Desperation, Frustration….a little rant

desperation

It’s been a long time since I’ve written.  Life can really get in the way of being able to see ANYTHING!  What does life look like for Katy right now?

  1. Diagnosed with 3 autoimmune diseases.  Able to manage one with diet.  The other 2 are apparently managed with medications, one is prednisone the other hydroxychloriquine.  Prednisone can’t be long-term, causes crazy bruising and causes other health concerns, finished my second course and now it’s out of my system and all symptoms have come back.  Hydroxychloriquine takes months to work, and that’s if it decides to work.
  2. Daily symptoms: extraordinary pain in my feet, burning pins and needles with swelling, swollen painful hands, headaches, low back pain, body shaking uncontrollably from the inside out, insomnia, mood swings, brain fog and confusion, ringing in my ears, fatigue, low blood pressure, dizziness and abdominal pain.
  3. Recently had to move because our landlord decided to sell our house AFTER we signed another 4 year lease agreement.  Have to love the little clauses in a lease.
  4. Husband’s employer decided to reorganize their departments, which left him out of employment, so we lost our health insurance.  We also lost our church, our second home and a lot of our community.  A churches words on stage only run that deep, integrity doesn’t always run deep behind the closed doors of the church.  I haven’t lost my faith in God, but I have in the people who teach it.  Yes they are also human and sin and make mistakes, but actions speak louder than words.
  5. New health insurance is crap and beyond expensive, so I’ve lost my psychologist and psychiatrist, back to a conglomerate healthcare system that has the WORSE mental health department.
  6. Just had the one year anniversary of my brothers tragic death, which is still so fresh I can’t even touch the surface of speaking about it.

I’m done with seeing and experiencing all of this.  Who gets me through it?  God.  I know He has a plan for us and everything we are going through, I know there is a light and I am seeing glimmers of it in the distance.  But-it feels so far away and hard to catch up to.  I want to feel energy again, unity, pain-free, confident and directed.  Instead I feel slow, alone, pained, uncertain and reeling with desperation.

One step at a time, one day at a time, one prayer at a time…it’ll all come back.  Yet my patience runs thin.

Psalm 23: The Lord is my Shepherd, I shall not want.  He makes me lie down in green pastures; He leads me beside quiet waters.  He restores my soul; He guides me in the path of righteousness for His name’s sake. Even though I walk through the valley of the shadow of death, I fear no evil, for You are with me; Your rod and Your staff, they comfort me.  You prepare a table before me in the presence of my enemies; You have anointed my head with oil; my cup overflows.  Surely goodness and loving kindness will follow me all the days of my life, and I will dwell in the house of the Lord forever.

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2 thoughts on “Desperation, Frustration….a little rant

  1. Sweetheart I can’t even begin to imagine how you get through even 1 day. I love how much you adore your family. I feel extremely honored to see your posts. Keep going my friend. Things can only get better. Lots of prayers for you and your family. 😘

    Like

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